1.24.2008

Waiting to Exhale

Shit.

That's what Will yelled as he received his third IV in as many days.

Shit.

That's what my immediate reaction was when Will's neurosurgeon confirmed that yes, there is a problem with his shunt.

Sigh.

That's what I'm doing right now as I sit in the family waiting room, scared for my son having brain surgery but relieved that after the longest five days in recent memory, we finally know what's wrong.

We've been through this before, so I know what to expect. The Beast You Know blah blah blah.

As long as my baby gets back to being his usual happy-go-lucky self, I can wrestle with this beast as long as necessary.

It's all part of the job.

Postscript
11:15 pm

Two hours, including diagnosis, pre-op, surgery and post-op, to rectify five days of hell. Will came through surgery, with, as they say, flying colors. I shall be eternally grateful forever to his neurosurgery PA, who has seen Will since his NICU days and just had a feeling that even though the x-rays were problem-free, something wasn't right. And to his gifted neurosurgeon and the team who moved quickly and efficiently, all the while making sure we parents were informed and comfortable with the process.

Will is sleeping now in his big old hospital bed. But I know that finally, he's at rest, as we've dealt with the beast. For the moment.

3 comments:

Marissa said...

Waiting to exhale indeed. I simply cannot imagine the thoughts that run through your mind. I'm so happy that Will is blessed with such an outstanding doctor and team. God Bless.

Sherrie said...

I happened upon your blog from Marissa's, and I wanted to say hi. My 11 year old has had two open heart surgeries and numerous other procedures at the children's hospital, so I know the atmosphere of the family waiting room far too well. I'm glad to hear that Will is doing well, he has all my best wishes that it continues that way for a long, long time.

janey jay said...

Thanks you guys, for all your sweet words of support and concern. It means more than you will ever know. There's probably an '80s song that goes along with this, but I'm blanking right now.

Sherrie -- nice to know someone who understands what it's like to be what I call a 'frequent flyer' at All Children's.