I know God never gives you more than you can handle. I just wish He didn’t trust me so much.
~ Mother Teresa
It’s become a Saturday standard around here.
Will had a seizure just now. This one was particularly bad. Tonic-clonic (the type of seizure formerly known as grand mal. Prince isn’t the only one that can change his name…) And while it lasted probably around three minutes, it seemed like an eternity.
Can I just tell you how much I effing HATE that he has to go through this… you cannot even fathom the depth of my hate for this.
I seriously think I know what hell looks like – it’s watching your baby going through such a horrible episode, his body in unprovoked angst, while you stand by, helpless to stop or control it.
I would not wish this on my worst enemy.
And mixed in with the pain and drained emotions is anger. Yeah. Not at myself, for once. Novel.
I just don’t understand why this has to happen to MY boy. Who never ever did anything to deserve this. Whose entire existence, since the very moment he came into this world, has been plagued with issues of the health variety. C’mon – he nearly died at only two weeks old because of his precarious health. I know that this sort of thing is all he knows. But that doesn’t mean it doesn’t suck. Big fucking time.
I found myself, just moments ago, with tears running down my face and catches in my throat. Bargaining with God. Give me the seizures and the pain – take them from Will and give them to me. When one’s heart walks around outside one’s body, one does and says whatever she can to protect that heart.
I know that’s not God’s style – not His thing. He loves Will. He loves me. And we love Him. There is no question about any of that. But a mother in pain for her child says many things in the heat of the moment trying to make sense of what is to her a senseless situation.
A very wise friend (who is also a pastor) told me that it’s OK to be mad at God – if anyone can take it, He can. But (and you know there’s always a “but” with this sort of thing…) you just can’t let it consume you. Much like Ari Gold always says, you eventually gotta hug it out. In a manner of speaking.
Will’s sleeping it off now, sawing logs like he’s in the finals of the Lumberjack Games. (He inherited the Johnson sinus issues. As well as the Johnson wide feet. Lucky us.) And after some TLC from some dear friends who made me giggle, some counsel from a loving pal and some quiet time with God, I think I’ve regained some equilibrium.
Not sure why this episode affected me so deeply.
Maybe it’s because it hit Will so hard.
Maybe it’s because my feelings of helplessness simply reached their tolerance point.
Maybe it’s just because.
If you should ever leave me
Though life would still go on, believe me
The world could show nothing to me
So what good would livin' do me
God only knows what I'd be without you
Labels: My version of motherhood




I am sending all my love and prayers your way. I wish I was closer, I'd give you a big hug and a shoulder to cry on.
It's the helplessness that really gets to me too. I do understand your anger and have shared it.
You are loved, dear Jane. Remember we are here to help you vent, and be angry, and cry, and laugh, whenever you need us. XOXOXO
Give Will our love and I hope we can make it to the beach with you guys soon. Though you will probably have to drive to our side now.
ILYTTSABA my dear friend.